So we have successfully completed our first radiation treatment. I would have to say that Taylor was less than enthusiastic about the whole thing and would probably not be encouraged by the fact that there are 27 more to go. They put them to sleep so it really shouldn't be too traumatic once she knows what to expect.
Taylor is still quite uncomfortable. They removed the drip and tried to decrease the pain meds but she just wasn't ready and the pain got out of our control and we have had a hard time getting a hold of it again. Much of the day is spent trying to convince the doctors that she is in pain. They are concerned about her breathing, which obviously is very important, but we don't believe that the morphine is what is causing the breathing problems. It is much more likely the very large tumor that is blocking her airway. We do understand that the combination of morphine and the tumor causes problems. We just hate to watch her in pain because all she can do is lie in bed and stare at the ceiling. The good news is that the doctors expect that with the combination of chemo and radiation, the pain and breathing should resolve themselves within another week. Please pray for that!
The rest of this week will be filled with radiation and hoping and praying for improvement so that we can get home. Her white cell counts are very low now so we also have to hope that she doesn't get an infection. Kind of seems like if it isn't one thing, it is another these days.
Update from Kristin: February 5th, 2008
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3 comments:
Hi Kristin,
We are praying...everyday. I don't get off the phone without reminding the person to say a prayer for Taylor. Keep positive and keep talking to her. Tell her that God is with her and He is helping her. She will feel better..it's just going to take some time.
I pray that He continues to give you, Keith, your family and all of us strength to keep our faith in Him and His ability to help Taylor through this.
We love you all and we're with you.
Nico n' Mom
Kristin, April told me of Taylor's fight yesterday and I've just caught up on the blog. I'm thinking of all of you and sending extra special vibes from San Francisco. You can tell Taylor that they're extra-special strong because, hey, where else has strong vibes but the home of hippies?
Love,
Carolyn Rohrer
Kristin and Keith - I check on Taylor's progress everyday and am praying that she will feel better very soon. I am truly amazed at how strong she is at 5; she really does inspire me. We are also thinking of you, Keith, and Charlie, and know you have the strength to endure this. Please let us know if there's anything at all we can do. I can't think of a more appropriate sign-off than our alma mater's slogan - FIGHT ON!!
Stephanie and James Weirick
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